Newborn screening programmes – need to consider parental awareness and knowledge
نویسندگان
چکیده
منابع مشابه
Newborn and childhood screening programmes: criteria, evidence, and current policy.
creening is offered to apparently well individuals to identify those at high risk of a specific condition, for whom early treatment, more effective treatment, or information may be offered in order to improve health outcome or to provide opportunities for informed decision making. By definition, screening tests are not diagnostic tests and therefore cannot separate reliably those with a specifi...
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The Universal Newborn Hearing Screening (UNHS) programme aims at achieving early detection of hearing impairment. Subsequent diagnosis and intervention should follow promptly. Within the framework of the Ministry of Health project CCM 2013 "Preventing Communication Disorders: a Regional Program for early Identification, Intervention and Care of Hearing Impaired Children", the limitations and st...
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Objectives: To understand public awareness of newborn screening and public views on criteria needed for a disorder to be included in universal newborn screening. Methods: Adults in waiting rooms of internal medicine and pediatric clinics completed a survey. Results: 55% of participants (n=213) were unaware that all newborns are screened at birth for certain disorders. Nearly 60% supported scree...
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A view from the EULAR Standing Committee of People with Arthritis/Rheumatism in Europe (SCPARE) on some of the issues that patients might wish to consider about biosimilars in shared decision-making discussions with their rheumatologist. The paper also points to the need for more information on biosimilars being made available in lay language.
متن کاملParental tolerance of false-positive newborn screening results.
OBJECTIVE To measure parental tolerance for a false-positive newborn screening result by assessing perceived quality of life for screening results and health states associated with expanded newborn screening programs for metabolic disorders. DESIGN Perceived quality of life was measured using time trade-off and willingness-to-pay questions for a false-positive newborn screening result and oth...
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ژورنال
عنوان ژورنال: European Journal of Public Health
سال: 2017
ISSN: 1101-1262,1464-360X
DOI: 10.1093/eurpub/ckx189.166